An Update

Thanks for all of your well wishes and prayers.

I wish I knew all the answers, but I don't.

The neurologist at Mass. General does not think that I have RSD/CRPS. She thinks it is a small-fiber polyneuropathy. I had a skin biopsy, which will show those small-fiber nerves, on Thursday. Next Thursday, I will have an autonomic test that will assess the functioning of -- you guessed it -- my autonomic nerves, which control the heart/lungs/sweating/etc.

If you're the praying sort, please pray that my small-fiber nerves are normal, and that my autonomic testing comes back 100% normal. Please pray that my pain will be cured.

At heart, I am a a journalist, a researcher. I gather information. Figure things out. Find the answers.


This has been hard on Brian and my mom. And me. I've scared myself thinking I have things I don't. Now, I know more than I want to know about what I may be facing.

This week has been hard. Brian has threatened to rip the Internet connection out of the wall. I'll be doing good, mentally, then I'll read something on one of the forums or break down and Google something and I'll be in tears again. Or the pain will flare, and my fear with it.


On the plus side, I'm getting closer to God. I've been saying for months now that I trust God, all the while trying to figure things out myself. I work this over and over in my mind until I'm on the verge of a nervous breakdown.

Last weekend I went to my Mom's and cried for 24 hours straight. I fell asleep crying and woke up crying.

There's no question. This is scary. "No cure" is a possibility. Pain meds forever. When I asked the neurogist if this will get better she in essance gave me "the hand." I need the diagnostic work up before we know anything.

God is working on me, helping me trust him instead of trying to figure everything out myself. I think I'll have an easier time learning to trust Him than to trust my doctors. But I'll have to learn to trust them too, for the most part anyway.

Thanks again for your prayers.

I cry out to the Lord and he heals me. PSALM 30:2.

Prayers Needed

I just wanted to let you all know what’s going on with me and ask for your prayers.

As you may know, I have had ankle pain since November. I have been seeing several orthopedic doctors. In April the pain spread to my other ankle. Now it is spreading up my legs and I’m having some symptoms in my arm as well.

On Thursday I was referred to neurology and pain management. It looks like the pain is nerve based and I may well have a chronic progressive pain condition called RSD or CRPS. There is no cure but if caught early it can be put into remission.

Please pray that I can get a proper diagnosis and that I will be cured completely. Some of my prayers have already been answered as I am seeing a top specialist tomorrow.

Thank you so much for your prayers,

Love,
Kris